Tuesday, January 24, 2017

Betsy DeVos

In the interest of trying to remain as objective on this subject I did some research. I have worked as a recruiter in the past, there are several aspects to recruitment and job descriptions, the one aspect I wanted to research was "Qualifications" or "Requirements. What exactly determines someone is qualified for a position? What separates them from other candidates? What are the minimum requirements for a job? All I could find for the Secretary of Education was a broad description of duties, no minimum job requirements. Interesting. I will admit in the interest of time, I have gotten the majority of my background information from Wikipedia, if you feel that I need to dig deeper, please advise, he is the link listing prior secretaries leading to their various backgrounds.


I asked myself, what would I do if I was asked to recruit for a position, how would I define minimum requirements for the job if there was no previous documentation? My answer is to look at the past individuals that have held the position and draw my information from there. There were some similarities which I could I would put as minimum requirements, some would or should be preferred. One is that everyone had a Bachelors degree, however only two had Master's degrees as well as two held Doctorate degrees as well, and the acting Secretary prior to inauguration day had a Bachelor's degree, a Master's degree, and a Juris Doctorate. All the prior Secretaries held degrees in one or more of the following subjects: Political Science, Government, and Sociology from well known universities. Betsy DeVoss holds a Bachelor's degree in  Business Administration and Political science from Calvin College, I have never heard of it, I am not sure what their academic standings are in relation to the degrees that some of her predecessors held from Harvard, Yale, University of Houston, and University of Indiana Bloomington.

What also struck me is that all prior secretaries held positions working with education in the public sector, as well as having either founded publically funded charter schools or having worked as their administrators. Betsy DeVos has not, she has been involved in political action groups and foundations in the education sector, but it appears she has not been directly involved in the administration of a school either pubic or charter, and has never worked in a position at any level involved in government or education other than working with private foundations and political action committees, in fact I could not find information that looks like she has served in the public sector at all, which in looking at past Secretaries, should appear to be a job requirement. That in and of itself should disqualify her.

Ok, that's my impartial view, on to my more opinionated one. She wants to open up public education to privatization, looking back historically, really, how often does that work well? Does she have a model or any objective information on how that would be beneficial? Not that I have seen. Let's face it, I highly doubt there are going to be a lot of private schools opening up in lower income neighborhoods to benefit those children. What makes her think a private school would do a better job  with public funds? If you funded a public school with the amount of dollars that private schools get per student, I'm sure that school would also improve too.

I can't really argue against choice of schools, for us it has been a life saver to be able to send my son out of district to another public school. If we had been able to have my son's needs met we would have stayed, what I had found shocking was their lack of accountability in the district, and I would have to ask myself how much worse will it be for parents like us if she is appointed?

We did look at private schools, a couple had a focus on kids with disabilities, one of the biggest deterrents for me in going that route was that we were advised  my son's IEP would be invalid, private schools are not held to the same standards for disabled students that public schools are. They are under no legal obligation to accommodate or compensate for his needs at all. Not to say they won't but they are under no legal obligation to do so, and there is little to no recourse if they do not. Privatization would definitely not serve well for children with challenges, and isn't the Department of Education required to serve everyone? I was also unsettled by her repeatedly answering that she would let "the States" make decisions on a variety of topics, which is really not what she would be appointed to do, her position would supposedly require certain decisions be made, not let the states do it for her.

Let's also mention the fact that some of the largest teacher's unions and organizations oppose her quite strongly, these are organizations she is supposed to ultimately work with, and they have in the past have successfully pressured Secretaries to resign.

That's it for now, however you feel on this topic, that is my opinion, info on how to call your elected officials to express your opinion are in a link provided in the prior post.

Monday, January 23, 2017

Want to make some calls???

There's a lot going around about different things and ways to call and make a difference with our elected officials. Below is a link to a good document that gives instructions and pointers.


I'm Back

Whoa, I see it's been awhile since I have posted, things got away from me but in this new era of uncertainty, I feel like I need to start posting again, because I'm pretty sure some politicians will start trying to take away funding and services again so I will.

Things have changed here as well, after much debate, arguing and banging my head against the wall, we decided to place my son in another school outside of Deer Valley School District. It was not an easy decision on our part, we did everything we could, including going to a school board meeting and speaking out about the lack of services and letting them know about their reputation in the Special Needs Community as being one of the worst districts to deal with. THAT did not even precipitate many changes for my son.

So, I, after some research, I found another school (I do not want to give the details in this public forum, nor do I want someone to be able to identify who he is). I had a couple of last straws, one being my son coming home from school, banging his head on the wall telling me he hated himself and he thought he was stupid on a continual basis, the other was him being continually assaulted by another student that was bullying him. My meeting with the principal did not go well, she looked at me and stated that she didn't want to use the term "Bullying" when discussing this situation, to which my reply was "Okay, how about we use the terms assault and negligence on your part?"

She then told me the aggressor was another special needs student to which I replied that she failed them both for both of them being in a situation in which one of them could be harmed. I asked her to explain to me how she thought it was beneficial and healthy for the other student to be in a situation in which he was able to harm another student if he could not control himself. I asked how would she feel if she was put in a situation in which she was going hurt someone and could not stop herself, what kind of stress would she be under, and what that would do to her self worth. Her reply? "I didn't think about it that way" For me, I just can't reconcile keeping my son in a place where someone in authority does not "think" that way.

It reminded me of a phrase that I saw online it's like "Playing chess with pigeons, no matter how good you are at chess, the pigeon is just going to knock over all the pieces, crap on the board, and then strut around acting like it won"

The good news is my son is in a much better place now, it took us awhile to work out a new IEP because the other one was so poorly written, executed and had little to no documentation. There were goals that were written when he was in kindergarten that had not been updated at all.

What we found is that in fact my son is a gifted learner (this was figured out in a week, as opposed to the old school whom never even noticed that this was a possibility), and while he doesn't test well on gifted placement exams, that is how he functions, we now have the documentation to prove it, and a terrific school that is willing to work with him on his level to address his needs. He excels in school work, and is performing 2 years above his grade level. He is happy, and has not once stated that he thinks he is stupid anymore. He scores extremely high on his AIMS test, according to their graph, he outscored most of the kiddos in his district, at times I have been tempted to send his old district a copy of his scores and tell them to "suck it", but I have refrained. He has been at this school for three years now.

As far as DDD goes, services for us have been a challenge with timing and the distances we have to travel to and from his school, but thankfully there has been no effort to reduce them.

So far, so good, I will do research on some of the political stuff coming out, I'll try to be as objective as I can.

Wednesday, August 21, 2013

Deer Valley Unified School District

I have had my challenges to say the least with this school district and literally fighting to get services provided for my son.

I have called several agencies, they seem to have a reputation for fighting with parents on providing services, I must say my own personal experience seems to validate this, especially for physical therapy.

Has anyone else had this experience with this district?

Tuesday, April 10, 2012

The Fight for Xopenex

If you are not familiar with this medication, it is an inhalant very similar to Albuterol, similar BUT NOT THE SAME. I had a very hard time convincing United Health Care (UHC) of this fact. I had to fight this one all the way, and I figured I would post how I did it to help anyone in the same boat. Lucky for me, being stubborn in these situations pays off.

My son had been taking Xopenex since he was in the NICU. They had attempted to use Albuterol, but his heart rate and blood pressure went way too high while he was on it, so they gave him Xopenex and he responded much better. He was on it last year, while it was not on the formulary, his doctor was able to get it authorized with a medical review. Then this year rolls around. My son's doctor goes to get it authorized again using the SAME process, and UHC denies it, sending a letter home to me stating that it was not on the formulary, and that they would not authorize it because Albuterol was an acceptable "therapeutic alternative" and that was on the formulary list. I called, and spent approximately two hours on the phone trying to figure out what was going on. I explained to everyone I spoke with that these are very DIFFERENT medications, and Albuterol is NOT an acceptable alternative in my son's case, and the reason why. I was able to file an appeal to this decision over the phone, stating the differences in the meds, and the fact that it was authorized the previous year (to be honest, I could not find anyone to speak to on the phone that had a good explanation as to why it was authorized the previous year and they were currently denying it).

It was denied again. Nobody could explain why. I had to spend over an hour on the phone again before I finally could speak to a supervisor that was able to review the case and the notes. He reviewed the documentation and was able to pull up notes from the previous year. He mentioned that perhaps the appeal got denied because it did not reference these notes directly (even though I had instructed the previous rep to do so), so he wrote another appeal for me citing the specifics. I also requested and received from my son's doctor a copy of their notes stating that Albuterol has caused my son to have "tachycardia" (heart rate rises to unacceptable levels outside the normal range) when he has taken it in the past. I also sent a copy of these notes in as well.

It got denied again. The supervisor I had been working with called me to tell me it was denied, I asked to be put in touch with the person making the decision to discuss the medical concerns I had about this turn of events, but I was told it was an "administrative" decision, and not a medical one. I was a bit shocked, he indicated that he had attempted to get this case reviewed by a individual with a medical background, but they refused to do so, stating that this was a case in which they felt that they didn't have to do so, and they were only making an "administrative decision", and advised me of my appeal rights. I called one of their "resolution specialists" and attempted to demand this go under medical review, they refused to do so repeatedly, saying basically they won't review it medically because they didn't think that they had to.

I filed an appeal with the Arizona Department of Insurance, as well as a complaint about the fact that they were refusing to have my son's medication situation evaluated by a qualified medical professional, just administrators. I submitted my documentation of my experience with UHC, and the notes from my son's doctor, as well as the form my son's doctor had filled out the previous year in which UHC had used in their initial authorization of it.

The Department sent this case to an independent reviewer to make a medical determination, they overruled UHC stating "This patient has exhibited tachycardia in response to treatment with racemic Albuterol but has tolerated Xopenex for a number of years without unwanted side effects. The literature supports the use of Xopenex for patients with asthma in general and in particular those with undesired side effects from treatment with Albuterol. As such Xopenex is not unproven in this patients care  and is medically indicated. Therefore, the Insurers denial should be overturned"

It took a while, and a lot of aggravation but we finally got what we needed. It is unfortunate, if UHC would have just followed the same procedure they used the previous year, they would have saved themselves a lot of time, and effort. If they would like to reduce their costs, I would suggest better training their staff, even cutting my call times from two hours to one hour would help their bottom line (there were several of these calls), not attempting to deny medically necessary medication, in fact they wound up INCREASING their costs in terms of administrative work and manpower. Very shortsighted of them.

Sunday, April 8, 2012

All Doctors Don't Always Have the all the Answers

I have always said that doctors know a lot of things, but the absolutely do not know everything, and in this case that could not be more true, there's a story I would like to share.

My son is a very active, sometimes hyperactive boy, he is all over the place a lot. My son had been struggling with potty training, I mean really straining and struggling. We told his pediatrician who told us to keep working on it and try to motivate him, they also suggested for us to go see a developmental pediatrician. We took him to a center, and the doctor evaluated him. I have said all along that I believed that there was more to his potty training than just a behavioral issue, I just had a feeling that there was something else going on. The doctor said she wanted us to put him on a potty "sitting" program, and make a reward chart for him, not once discussing any medical issues that might be causing this problem, when I asked about any medical conditions because my son is constipated a lot, she stated she thought it was more behavioral. I had already made an appointment with a GI and advised her of it, she looked at us and said "Well you can do that if you want to, but in the meantime I want him on a sitting and rewards program, that should get him trained more than anything else". I also reiterated that I wanted to rule out other conditions first, and I was going to wait to develop a behavior program or plan until he saw the other specialists, she suggested that we take my son to see a psychologist to work on this issue, and help us create reward charts.

I took my son to a GI (it had taken months to get him in), he looked at my son and his stomach, then sent him for an x-ray of his abdomen. The results? his  bowels were impacted, his colon is twice the size it should be, and his rectum is 4 times normal size, the tissues are so stretched out, not only can he not feel when he has to go, he would not able to physically push it out even if he could feel it. Poor kid, we were asking him to do something he just physically could not do. I am amazed at how stoic he is, he was going though all of this, and we had no idea how bad it was, he just takes it all in stride and acts like his happy normal self. Any rewards system or behavior program would just have frustrated and traumatized us all even more, and according to his doctor, if it had gotten much worse, he could have started to vomit fecal matter as it continued to back up.

The condition is called "megacolon", and my son's symptoms were pretty typical, there is a lot of good info on it if you Google it.

I shudder to think what might have happened if we had gone the behavioral route, it would meant a lot more suffering all around.

As it is, once his system is clear, he has to go on a whole rehabilitative program with both meds and physical therapy to get his stomach muscles functioning again, and then hopefully our potty training adventures with him will be done, there is a light at the end of a very long, messy, smelly tunnel after all : )

Again, more validation that while doctors know a lot, they don't always know everything !!!!

If you don't get an answer that feels right to you, keep looking! Don't give up! I know sometimes doctors see a very active child, or one who acts outside of the norm, and they like to just assume that there is a behavior problem, it's what they know, I've talked to a lot of parents that have told me this, and a lot (though not all) of the time there turns out to be an underlying medical cause, and once that is taken care of, everything else falls into place. Even Freud once said "Sometimes a cigar is just a cigar" which means that we should not always try to psychoanalyze everything or come up with complex answers when sometimes the answer could be a simple explanation. 

As for us, we have a medical plan of meds and sitting combined, which my son is now more than happy to participate in, the reward is being a big boy,  having things under control, and no more "accidents". No reward chart needed. 

Thursday, September 15, 2011

Attendant Care

I recently had a "debate" over attendant care services for my son through DDD/ALTCS. I was requesting attendant care, and they were not really wanting to provide it. They tried to tell me that it was for people that were not ambulatory, but when I challenged them to provide me with the specific written policy that makes that statement, they backed down.

They tried to lead me to believe that Attendant care can only be provided for a lot of physical care tasks only, which is not true. They had a "tool" to figure out how much time that should be allowed to care for my son, which is MISSING a component of Attendant care as it is described in the ALTCS manual which is "General Supervision and Monitoring". Here is an excerpt from the manual:

General supervision which includes:
a. Monitoring and companionship for a member who cannot be safely left alone
b. Assisting with self-administration of medications, and
c. Monitoring the member’s medical condition and ability to perform the activities of daily living.

To their credit, I did get the services requested on appeal, and I did make a point to include a copy of the "tool" as well as point out it was missing this piece from it. The official definintion for Attendant Care (1240-B) and all other services available are in the manual. It is a good resource when you are considering other services as well and it also defines requirements for providers. The link to the ALTCS manual is here: